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Patient campaign group Long Covid Support have created a COVID-19 Research Involvement Group on Facebook. The purpose is to allow conversations between people with lived experience of COVID-19 and scientists, academics and innovators developing research. The aim is to foster constructive collaborations to drive research which benefits patients. Researchers and innovators may place posts seeking patients to be involved in developing research, or seeking participants to take part in existing studies. The group has contributed to patient involvement in numerous national and international research programmes including the NIHR Living with COVID-19 Themed Review and the NIHR/UKRI call for research into prolonged symptoms of COVID-19.
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