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Description:
Report of a public involvement in research webinar mini-series. NIHR Children’s Health and Maternity National Priority Programme. Links are included to the audio recordings of three online webinars on:
· Building capacity in Patient and Public Involvement (PPI) leadership
· Equity, ethics and budgeting for public involvement in research
· Emotions in public involvement.
The series included doing peer research and furthering expertise by means of a Community of Practice, the role and experiences of public co-applicants, ways to build capacity in public-led PPIE, learning from a co-produced training event to involve diverse communities in research, the interplay between researchers’ intentions and the context challenges of health services research, inclusive trauma-informed research with groups whose needs are complex, including youths with care-experience and mothers who have had a baby removed at birth, and the role of emotions in research and public involvement work.
Conclusion
There was a clear expression of interest to be part of relevant, on-going networks for mutual learning, signposting, and access to resources. A particular gap appears to be opportunities for public advisers and peer researchers to access support and share their experiences in groups set up specifically for them and their learning and development needs.
We recommend that NIHR and other research funders prioritise funding for public involvement infrastructure.
This is needed for:
• Public involvement in research interest groups, facilitated over time.
• Development of easy-to-read resources and participative learning about public involvement, drawing on evolving expertise.
• Communication about public research involvement opportunities via social media channels.
• Segmented learning opportunities for people with different levels of experience may be useful.
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