What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines

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Topic:

  • Payments

Resource type:

  • Article

Authors:

  • Fox, Grace Fergusson, Dean A. Sadeknury, Ahmed Nicholls, Stuart G. Smith, Maureen Stacey, Dawn Lalu, Manoj M. Lalu

Publication date:

  • 5th January 2024

Date added to Learning for Involvement:

  • 23rd January 2024
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Description:

An integral aspect of patient engagement in research, also known as patient and public involvement, is appropriately recognising patient partners for their contributions through compensation (e.g., coauthorship, honoraria). Despite known benefits to compensating patient partners, our previous work suggested compensation is rarely reported and researchers perceive a lack of guidance on this issue. To address this gap, we identified and summarised available guidance and policy documents for patient partner compensation.

If you feel any of the information on this page needs amending or would like to request the deletion of this page, please contact us at publicpartnerships@nihr.ac.uk

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