Payment for helping health and social care research: A guide for members of the public who want to help with research

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Topic:

  • Payments

Resource type:

  • Guidance

Authors:

  • Health and Care Research Wales, Health Research Authority and the National Institute for Health and Care Research

Publication date:

  • 18th April 2024

Date added to Learning for Involvement:

  • 18th April 2024

The Health and Care Research Wales logo, the NIHR logo and the Healht Research Authority logo

 

You can also download this Easy Read as a PDF.

Easy Read

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Two women looking at a piece of paper together This Easy Read booklet uses easier words and pictures. Some people may still want help to read it.
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What is in this booklet

Being offered payment

Your job status

Being offered payment

Two hands exchanging money People should be offered payment for helping health and social care research.
A bank building with a debit card in front of it If you help with research, you may be offered payment in cash or bank transfer.

Bank transfer is where the money is paid into your bank account.

A piece of paper with the word 'voucher' on it Some organisations may give you vouchers or gifts for your help.
Several pieces of paper with the word 'tax' on te front piece You may need to pay tax on the money you receive.

Tax is money you have to pay to the government.

A woman pointing to a stack of back notes Whether you need to pay tax depends on how much money you get from other places.
A person getting money out of their wallet You are in charge of making sure you pay the right amount of tax.
A booklet that says 'Personal Independence Payment' on the front. There is a large red exclamation mark next to the booklet The money you receive from helping with research may affect your benefits.

Benefits is money the government gives to some people to help pay for the things they need to live.

A woman wearing dark glasses thinking about personal independence payment You need to find out how your benefits might be affected before agreeing to help researchers.
A stack of banknotes with a downward arrow next to them. Under the arrow is the word 'less' If you get benefits you can ask to be paid less money for helping with research.
A person saying 'I do not want to be paid' If you get benefits you can also ask not to get paid at all.
A laptop with the NIHR logo on it Guidance on the NIHR website has more information about how this money could affect your benefits.
A man waiting at the bus stop for an approaching bus. There are bank notes underneath him If you have to pay money to help with research, like paying to travel, this is called expenses.

Expenses are money you have paid out to come to a meeting or any other activity related to helping research.

Two receipts If you spend money on expenses you must keep the receipt.
A woman in a suit pointing to herself You can help with research if you are self-employed.

Self-employed means you work for yourself, not a company.

A booklet with the word tax on the front. There is a blue cross over the right side of the booklet When you are self-employed, if you earn up to or less than £1,000 in one year in total, including helping with research, you do not need to pay tax.

Your job status

Laptop with the words 'job status' on the screen Sometimes before helping with research, you may need to find out your job status .
Hand putting money into a wallet This is so we can work out how to pay you for your time.
Person waving If you help with paid health research, this usually does not mean that you have a job with the research project.

If you need help finding your job status you can go to these websites:

Laptop with citizens advice logo on the screen The citizen’s advice website
The ni direct logo The NIdirect government services website
Two men talking to each other If you are not sure about your job status then please talk to the organisation doing the health research about it.
These activities do not usually count as a job:
Three people sat around a table having a meeting Going to meetings and events, like drop-in sessions and open days.
A man reading a document Reading documents, like application forms and information sheets.
A big group of people sat around a conference tbale discussing documents Activities and projects that take place over a short amount of time.
People discussing around a table, there is a large blue cross over the image Helping with research that keeps going for a long time like taking part in groups or committees is not a job.
A group of people around a table A committee is a group of people which makes decisions for an organisation.

This Easy Read booklet was produced by easy-read-online.co.uk
The booklet includes images licensed from Photosymbols & Shutterstock.

If you feel any of the information on this page needs amending or would like to request the deletion of this page, please contact us at publicpartnerships@nihr.ac.uk

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