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Topic:

  • Co-production
  • Communicating
  • Getting started: becoming involved
  • inclusive-involvement
  • Involvement good practice
  • Working with communities

Resource type:

  • Guidance

Authors:

  • Catherine White and Dr Julie Highfield

Publication date:

  • 30th March 2024

Date added to Learning for Involvement:

  • 17th January 2025
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Description:

People who have utilised health services are often invited to offer their expertise through research, service evaluation, giving patient experience talks or other forms of feedback. This is often referred to as Patient and Public Involvement (PPI). This guidance is intended for healthcare professionals, staff who work in patient experience roles, healthcare organisations, researchers and any others who interact with service users and their relatives who are giving insight and feedback through a PPI process.
This document offers guidance on how to work with patient and public involvement partners in a way that is both psychologically and trauma informed. It is split into key phases for any patient and public involvement activity. Throughout the phases the key underlying messages are the importance of choice and collaboration and creating emotional safety, which all need to be embedded throughout the process of the PPI activity.