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Topic:

  • About research
  • Co-production
  • Communicating
  • Getting started: becoming involved
  • Getting started: involving people
  • Impact and evaluation
  • inclusive-involvement
  • Involvement good practice

Resource type:

  • Audio

Authors:

  • York Trials Unit

Publication date:

  • 16th December 2025

Date added to Learning for Involvement:

  • 14th January 2026
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Description:

How do researchers ensure a clinical trial truly works for the people taking part? The answer is simple: ask the patients.

In this episode of The Research Room podcast we're revisiting the BioDrive AFS Study, a major trial investigating the best way to prevent and detect fungal infection in patients with blood cancer, to hear from the people helping to design it. We sit down with Trial Manager Dr. Sam Brady and Patient Advisory Group members Kate and Mary to explore how lived experience has helped shape the study.

Kate and Mary share their journeys from diagnosis to becoming research partners, proving that patient voices are not just helpful, they are essential. Discover the power of Patient and Public Involvement (PPI), plus learn how you can get involved to help shape the future of healthcare!