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Topic:

  • About research
  • Getting started: involving people
  • Involvement good practice
  • Working with communities

Resource type:

  • Guidance

Authors:

  • ARC North East & North Cumbria

Author site:

Publication date:

  • 17th October 2024

Date added to Learning for Involvement:

  • 4th November 2024
Ethical-Practice-Guidelines-FINAL-July-24 PDF, 1.1 MB

Description:

The NIHR Applied Research Collaboration (ARC) North East and North Cumbria (NENC) has developed a new guide aimed at supporting ethical public involvement and community engagement (PICE) in research. The guidelines will help to support researchers, public contributors, practitioners and anyone interested in health and care research to work towards ethically sound research practice specifically for the Public Patient Involvement/ Engagement (PPI/PPIE) element of the work.
A small working group of public contributors, researchers and Public Involvement and Community Engagement (PICE) leads have developed the guidelines, which aim to encourage a better understanding of ethical issues in relation to PICE amongst the research community.
The guidance highlights some of the key aspects that people might want to consider before undertaking PICE activity, and includes useful links to further reading and information. It also includes a handy ‘checklist’ that can be used by researchers and others, to make sure that key ethical issues have been considered.