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Description
National Survivor User Network
Added on 3rd December 2018
Website
The James Lind Alliance
Added on 3rd December 2018
The James Lind Alliance (JLA) is a non-profit making initiative established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnership...
Feedback Guidance for Researchers
Added on 30th November 2018
Guidance for researchers on providing feedback for patients on the outcomes of their research. Feedback currently is not routine and is very variable.
NCCPE Engagement training links
Added on 21st November 2018
National Coordinating Centre for Public Engagement website, with links to engagement training.
Sense about Science website
Added on 21st November 2018
Sense about Science is an independent campaigning charity that challenges the misrepresentation of science and evidence in public life. We advocate openness and honest...
Health Talk Online
Added on 21st November 2018
At Health Talk Online you can find information and support for a range of health issues by seeing and hearing people's real life experiences. This includes people talk...
Evaluating patient and public involvement in health research: from theoretical model to practical workshop
Added on 21st November 2018
Journal article exploring the practical utility of the theoretical framework as a tool for mapping and evaluating the experience of PPI in health services research.
GRIPP-2 reporting public involvement guidelines
Added on 21st November 2018
Journal article describing the first international guidance for reporting of patient and public involvement in health and social care research.
Working Together: A toolkit for health professionals on how to involve the public
Added on 15th November 2018
The toolkit has been designed to be a quick reference tool on ‘how to do it’, with links taking you to more detailed text that explains either the theoretical fram...
Public involvement in research – just good science
Added on 15th November 2018
Emma Palmer-Cooper on the value of working with members of the public as more than just the subjects of research.