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Addressing Barriers to Engagement, Involvement & Participation in Research by Ethnic Minorities

Added on 26th April 2022

The COVID-19 pandemic has highlighted that people from ethnic minority communities are not as engaged with health and care research as some populations and are include...

Race Equality Framework

Added on 26th April 2022

The Race Equality Framework is a self-assessment tool to help organisations improve racial equality in public involvement in health and care research. The Framework wi...

To Public Co-App Or Not To Public Co-App, that is the question.

Added on 25th April 2022

Video about Public involvement as a public co-applicant on research studies. There is a really beneficial description of public involvement at 23:45 minutes in and a...

The Myeloma UK Patient, Family and Friends COVID-19 Survey

Added on 19th April 2022

In response to the COVID-19 pandemic, Myeloma UK are conducting a longitudinal study of three Patient and Family surveys. This summary report shows the findings from t...

COVID Connect: What More Can The NIHR Do To Support Research During The COVID-19 Pandemic And How Can The Public Support This?

Added on 19th April 2022

COVID Connect brings together CRN leaders and members of the public to discuss key topics related to the delivery of research during the COVID-19 pandemic. In November...

Pandemic Patient Experience

Added on 19th April 2022

Over the summer of 2020, patients were asked about their experiences during the first wave of the COVID-19 pandemic. The survey was available online from 6th May 2020...

Cancer patient perspectives during the COVID-19 pandemic: A thematic analysis of cancer blog posts

Added on 19th April 2022

Researchers sought to qualitatively describe the concerns and experiences expressed online by cancer patients, survivors, and family members in relation to COVID-19. 1...

People’s stories of leaving hospital during COVID-19

Added on 19th April 2022

Together with the British Red Cross, Healthwatch spoke to over 500 patients and carers and conducted 47 in-depth interviews with health and care professionals involved...

The Health Foundation COVID-19 Survey – third poll

Added on 19th April 2022

The Health Foundation commissioned Ipsos MORI to conduct a representative poll of the general public in Great Britain for a third time. For this round of the survey, o...

Patient-Led Research for COVID-19: Embedding Patients in the Long COVID Narrative

Added on 19th April 2022

Originating out of a dedicated online support group, a team of patients formed Patient- Led Research for COVID-19 and conducted the first research on Long COVID experi...