The Myeloma UK Patient, Family and Friends COVID-19 Survey



In response to the COVID-19 pandemic, Myeloma UK are conducting a longitudinal study of three Patient and Family surveys. This summary report shows the findings from the second survey. Survey 2 was launched after shielding measures had been paused and was open from 28 August until 16 September. Whilst the survey was live, schools re-opened in England and the ‘rule of six’ was introduced to combat rising cases of COVID-19 in the UK. There were 815 responses: 621 from patients and 194 from family and friends.
Key findings: Despite the low rates of infection, patients still experience a lot of anxiety about COVID-19. 66% of patients were very concerned that they would experience medical complications should they contract COVID-19. Shielding continues to be a complex experience; most patients are concerned about the pausing of shielding, but many are also anxious about shielding being re-imposed.
The NHS must ensure that sufficient testing capacity is in place throughout the winter to provide a safe clinical environment for myeloma patients, including regular testing for staff. It should also continue to adapt and innovate, including looking at community based models of service delivery where appropriate.

Publication date: 1st October 2020

Date added to Learning For Involvement: 19th April 2022




  • Covid-19

Resource Type

  • Report

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