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Cancer patient perspectives during the COVID-19 pandemic: A thematic analysis of cancer blog posts

Cancer-patient-perspectives-during-the-COVID-19-pandemic.pdf

Description

Researchers sought to qualitatively describe the concerns and experiences expressed online by cancer patients, survivors, and family members in relation to COVID-19. 152 blog posts written by cancer patients, survivors, or family members, were selected using combined Boolean searches and snowball sampling. Reviewers extracted subthemes from blog posts using line-by-line text analysis until a sufficient sample was achieved. Subthemes were hierarchically organized into major theme categories and illustrative quotations were identified. A total of 80 blog posts posted between January 20th and April 6th, 2020 were analyzed, revealing 23 subthemes.
Key findings: 38% of respondents reported that they were not happy with the process for being included in the ‘clinically most vulnerable’ or ‘shielding’ group. 67% of respondents had had health and care appointments cancelled as a result of the pandemic. 47% had chosen to put off accessing services and support. Over half the respondents felt that their health and care needs had not been met during the pandemic. Half of respondents agreed or strongly agreed that they felt more lonely during this period, and 61% said they felt more anxious or worried in general.

Publication date: 1st November 2020

Date added to Learning For Involvement: 19th April 2022

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Topic

  • Covid-19

Resource Type

  • Report

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